Service user advisers and researchers from the CLAHRC CP Adult Theme Service User Advisory Group (SUAG) have been working together over the past two years as part of a study looking at how integrated community-based specialist teams can best support people with intellectual disabilities and complex and enduring needs.
As well as making a direct input to the research design, the advisers have also given the researchers a different insight into the realities of the lives of people with learning disabilities.
The group jointly presented at the NIHR INVOLVE conference on 14 November about “Our journey together”. An interactive and lively session demonstrated examples of the group’s activities, for example how they had explored visual methodologies by taking photographs of their lives. Workshop feedback showed how the use of film clips, contrasting a service user’s perspective with their carer’s views, made a big impact on the audience.
Presenting at this national conference was a great achievement for the service user advisers and at the end of the session they were surprised and delighted to be invited to talk about their work elsewhere.
For more information please see the SUAG newsletter.